[fathead_glacier]

Collating a private database of health history is an extremely dangerous practice and I will just drop this article from rms which has further links to other systems [0].

The article in this post, however, is lacking an explanation of how MIB gathers the medical records. It is therefore unclear if the users gave their consent to share the information even if it was through vague fine print. On the other hand the story would be very different if the data was gathered and shared without consent and I might wonder if a legal case can be made here.

[0] https://stallman.org/ancestry.html

[Spooky23]

Your health data isn’t really private.

Various third parties have real-time access to your hospital admissions and prescriptions, in some cases before your insurer.

As an example, when my wife was admitted to the hospital at 8 weeks for a miscarriage that almost killed her, the level of detail provided to data brokers allowed Enfamil to Fedex a big sample box of formula to us on what would have been the due date of the baby.

No consent was given or needed.

[dvfjsdhgfv]

It's ironic how every now and again I read a piece by RMS that I find exaggerated only to come back to it a few years later just to find he was right. Come on, offering people DNA testing only to sell it to insurance companies? That's a new low to me.

[Latteland]

That article has no sense of irony, they don't even consider that someone might not want that. How was my info sent to that MIB group? I don't want that. Can you opt out? How is this even legal?

[zrail]

When you apply for life and disability insurance you consent to two things: the insurer may collect medical data about anything you mention on the application AND any or all of that may be shared with MIB. Approval is conditional on that consent and omitting anything on the app can lead to denials in the first two years and is technically insurance fraud.

So basically, if you don’t want your information in MIB don’t apply for insurance that requires a medical history.