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power | 6 years ago

30000 Lyme cases a year are reported by health services to the CDC so eventually some celebs are going to catch it, and since they make good news you'll hear about it. On "chronic Lyme", it's been rebranded as post treatment Lyme disorder (PTLDS), it's acknowledged by the CDC [0] and they also acknowledge that some experts hypothesize it may be the result of persistent infection, others an autoimmune disorder. One John Hopkins study [1] found the typical symptoms of PTLDS do persist for some after treatment for Lyme and another[2] found a set of symptoms allowing them to reliabily identify PTLDS. Any disease that lasts a long time and doesn't have a set treatment is going to attract quackery and plenty people will fall for it, but that doesn't mean there's no disorder there. The fact the symptoms can come and go makes it that much easier to associate their most recent treatment with a cure. [0] https://www.cdc.gov/lyme/postlds/index.html [1] https://www.hopkinsmedicine.org/news/newsroom/news-releases/... [2] Mentioned here https://www.hopkinslyme.org/lyme-disease/treatment-and-progn...

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ceejayoz|6 years ago

PTLDS is not entirely a rebrand of "chronic Lyme". It's specific to "people who had Lyme and still have issues". "Chronic Lyme" frequently involves people with no verifiable (or even likely) Lyme exposure.

https://www.niaid.nih.gov/diseases-conditions/chronic-lyme-d...

> In some patients, symptoms, such as fatigue, pain and joint and muscle aches, persist even after treatment, a condition termed “Post Treatment Lyme Disease Syndrome (PTLDS)”.

> The term “chronic Lyme disease” (CLD) has been used to describe people with different illnesses. While the term is sometimes used to describe illness in patients with Lyme disease, it has also been used to describe symptoms in people who have no clinical or diagnostic evidence of a current or past infection with B. burgdorferi . Because of the confusion in how the term CLD is employed, and the lack of a clearly defined clinical definition, many experts in this field do not support its use.