[alexmcc81]

Thanks you for this thoughtful response. I chose to be vaccinated and unfortunately have suffered serious consequences like a very small number of other people will statistically. It's been pretty disheartening to see that sharing anything negative about vaccines, even those warned about by medical officials, leads to very negative reactions from people (being told to shut up, being censored/downvoted online etc). I honestly no longer discuss why I'm sick or why I can't do certain things with friends or co-workers.

[core-utility]

That is awful to hear. I unfortunately think this entire debacle will leave a lasting distrust of our medical providers and institutions. Vaccine hesitant are already distrustful, and I believe in the coming months/year as more stand up to the censorship of these real issues, a growing number of vaccinated will feel mislead and lied to (whether justified or not). The only recovery path I can see is the return of a strong level of informed consent between patient and provider, and big tech getting out of the healthcare game.

[mauvehaus]

A good first step might be making sure the population is educated sufficiently to identify and weigh the risks between a 1 in 1,000,000 side effect, the disease the vaccine protects against, and the pure bullshit peddled by fear mongers.

Right now, we have people in the US who still believe that Covid is no worse than a bad case of the flu. All the evidence (at least for the pre Omicron variants) suggests that the reality, as viewed by death rate, is orders of magnitude more bleak.

[TrispusAttucks]

This saddens me greatly.

I'm continually amazed at the arrogant, ignorant, and down right "head in the sand" nature that has swept across the minds of the land. Worse is that "their thoughts are not theirs". They are being taught to hate you because your truth is inconvenient.

I wish you the best recovery possible.

[giantg2]

Good luck with any compensation. I hear it's even harder to get compensated through the countermeasure program than the regular vaccine program.

[mizzack]

Yep, a lot of people are unaware that this is covered by a separate, wildly different program. The coverages are outlined here:

https://www.hrsa.gov/cicp/cicp-vicp

CICP only covers severe physical injury or death, has a 1 year filing limit, only covers related reimbursement (not pain and suffering), and is eligibility is an administrative decision (not a judicial one).

[walterbell]

If "information is surprise" (Claude Shannon, 1948, https://plus.maths.org/content/information-surprise), we should be celebrating rather than censoring surprising information signals from living human outliers.

[elif]

I relate. After my vaccination I had about 2 months of severe pains in my gut. I only told a few people because I really believe in the power of the vaccine and know people will twist my own words.

[giantg2]

Hopefully you reported to VAERS. People need to report potential events so that the data is present to do statistical analysis on. It's a shame how terrible the data currently is with all the under reporting.

[benpiper]

I'm sorry to hear that. We need your voice. There are people who still haven't gotten "vaccinated" and are under pressure to do so. By speaking up you might be able to save someone else from what you're going through. Please don't let people shut you down. Your personal experience is the gold standard of scientific and clinical evidence. Any pushback you get is irrational and based on fear and ignorance.

[credit_guy]

> By speaking up you might be able to save someone else from what you're going through.

Exactly how? By not getting vaccinated? By making sure the risk of side-effects from the vaccine is lower than the risk of getting the disease? How can you weigh these risks? You can say, by doing statistics. You need to be able do estimate conditional expectations, the more granular the conditions, the better. For example you start with the unconditional expectation of having a severe outcome from Covid vs from the vaccine. The vaccine wins hands down. Then you do expectation conditional on age. The FDA and CDC did that when issuing their approval, and making the recommendations for various age groups. For more granular conditions, the CDC maintains the VAERS database [1], where every adverse event linked to a vaccine is tabulated. For example, let's say the CDC analyses this data set and concludes that for people with kidney stones the vaccine's side-effects outweigh the benefits. The CDC will issue the appropriate recommendation.

How exactly do you think someone's "voice on the internet" will result in people making better informed decisions, vs people actually listening to the CDC recommendations?

[1] https://vaers.hhs.gov/

[MaKey]

I hope your situation will improve eventually. Are you at least getting compensated?

[giantg2]

Someone else, but my guess would be no. It's not too difficult to get compensated if your injury is on the list of known injuries. This being a new vaccine, there is not a lot of history to have produced a robust list.

If it's not on the list, you have to prove that it was more likely than not caused by the vaccine. You have to provide the theory for the underlying mechanism that caused it. So if it's really rare, you're screwed because there likely hasn't been much if any research on it. Then it will take a minimum of 3 years to into a courtroom because the government has left the vaccine courts severely understaffed.

Dealing with something similar in my family. I believe it's an autoimmune autonomic dysfunction issue brought on by multiple simultaneously administered vaccines. This presented a few days after vaccination and the doctors didn't even report it to VAERS! They had no explanation of the cause yet didn't care to report it as a possible event simply because it's not required by law or "I'm not the primary care physician".