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mike00632 | 3 years ago

Here is a simple exercise: imagine these were your medical records and your former employer gave them to a third party for profit.

discuss

order

hn_throwaway_99|3 years ago

I, personally, would be 100% fine with this, as long as:

1. My data was anonymized.

2. At least in the Navy's case, that there was some assurance that some of the work would be made available back to the public, i.e. if all the data was tagged and organized in a way that an open source data set could be made (again, anonymized), but the analysis and any models built would be proprietary to Google.

I honestly don't understand why the knee jerk reaction would be to be upset at your simple exercise.

mike00632|3 years ago

The military members served the public. Google is profiting. You have it backwards.

burner7|3 years ago

Because you served to help your country and then call it a day, not have your medical legacy live on in a Google product after you’ve left. Just another thumb in the eye for vets from a public that doesn’t care beyond a NFL game. That’s where the simple exercise could lead.

gretch|3 years ago

How is it for profit? The government is paying Google, not the other way around.

Your former employer is paying a 3rd party service to digitize your old health records.

I’d much rather have digital records instead of paper files which can be trivially destroyed or lost. Imagine if I got cancer and had to sue this former employer and I could subpoena for this info.

jeffbee|3 years ago

Imagine I'm a dead guy from the 19th century?

chaps|3 years ago

They have much more than just 19th Century records. Where'd you get 19th century as an upper bounds from?

It seems hard to find date ranges for what they exactly collect and store, but I found this relevant line that gives 2002 as an upper bounds:

  "More than 99 percent of the 338 specimens from 1917–1969 were completely desiccated, as were over 72 percent of the 218 from 1970–2002."
https://www.ncbi.nlm.nih.gov/books/NBK236827/

Also, this gem:

  The JPC does not have documentation regarding any consent forms signed by patients or research participants whose data or specimens were submitted to the repository (Baker personal communication, 2011a). Such consents may have been obtained for clinical procedures used to excise specimens at facilities where people received medical care, but it is highly unlikely that they included notification that the specimens could be sent to a remote repository or used later for education or research purposes. Consents for research use may have been obtained for some materials gathered for the war or cohort registries, but the JPC has no documentation on these (Baker personal communication, 2011a).

drozycki|3 years ago

Can you think of a less obtuse way to interpret the comment? You may be missing a good point.