> Looking, you’re right. Those are regulated at the state level. But it does look like pretty much every state has a law.
The 1st state I checked to validate that, my own, doesn't. The state level laws much like the GINA act only cover employment and health insurance. There is a newly enacted law preventing consumer genetic testing companies from disclosing results without consumer consent, but nothing stopping an insurance company requiring consent for access or requiring their own genetic testing before issuing life or disability insurance. Based upon this I'm not comforted by the assertion that "pretty much every state has a law".
> preventing consumer genetic testing companies from disclosing results without consumer consent
Even if you didn’t consent, genetic genealogy can still be used to triangulate your genome from relatives of yours who do consent. This is still a manual process for now, but it’s very likely that a CODIS-like system to automate DNA triangulation for purposes of fingerprint search will be implemented soon. Only a small step from there to insurance companies being able to deny you coverage based on an “sub-clinical family history” of something.
Which makes the process of dismantling or avoiding the regulation actually slightly easier because all you need is one state to defect in order to cause a precedent which then allows for a regulatory cascade.
It’s almost deterministic at this point, and you see how they did it for clawing back reproductive rights.
And this issue is obscure enough for a small enough current population, that you would not be able to actually build a robust counter protest in any kind of sensible way.
So really all it would take is a handful of just Millionaires to care about this problem to throw — let’s call it $10 million - at lobbying in order to make it go their direction.
tssva|2 years ago
The 1st state I checked to validate that, my own, doesn't. The state level laws much like the GINA act only cover employment and health insurance. There is a newly enacted law preventing consumer genetic testing companies from disclosing results without consumer consent, but nothing stopping an insurance company requiring consent for access or requiring their own genetic testing before issuing life or disability insurance. Based upon this I'm not comforted by the assertion that "pretty much every state has a law".
derefr|2 years ago
Even if you didn’t consent, genetic genealogy can still be used to triangulate your genome from relatives of yours who do consent. This is still a manual process for now, but it’s very likely that a CODIS-like system to automate DNA triangulation for purposes of fingerprint search will be implemented soon. Only a small step from there to insurance companies being able to deny you coverage based on an “sub-clinical family history” of something.
AndrewKemendo|2 years ago
It’s almost deterministic at this point, and you see how they did it for clawing back reproductive rights.
And this issue is obscure enough for a small enough current population, that you would not be able to actually build a robust counter protest in any kind of sensible way.
So really all it would take is a handful of just Millionaires to care about this problem to throw — let’s call it $10 million - at lobbying in order to make it go their direction.
sitkack|2 years ago