[incongruity]

We have familial ALS in our family. I lost my grandfather, two aunts, and uncle and a number of more distantly related family members to this disease.

Thank you for posting this article – I'm lucky - my dad tested negative for the gene that has afflicted our loved ones – but I feel so guilty vs. all of my cousins who still have to face these risks.

We have the power to enable them and others like them to make their own decisions, to have even a slim bit of hope (or even a slim bit of uncertainty) for the first time since we've recognized that familial ALS was a thing. I can't overstate how big of a deal that is. Agency, even if risky, is so much better than the fear and powerlessness of waiting for the inevitable.