[kathysgeek]

Chronic Inflammatory Response Syndrome is the mother of all rabbit holes. But after suffering severe multi-system symptoms for many years I 90% recovered. Several experts in the field have told me that most if not all migraines are due to environmental exposure to toxins (mold and actinomycetes).

Environmental illness is real with measurable physiological effects. And it is treatable.

https://www.survivingmold.com/ https://www.survivingmold.com/docs/SHOEMAKER_PROTOCOL_ESSAY_...

[computer23]

Ritchie Shoemaker is a quack with a long disciplinary history:

https://quackwatch.org/cases/board/med/shoemaker/consent/

Unlike mold-caused asthma and allergies, "Toxic mold illness" and CIRS (Chronic Inflammatory Response Syndrome) are not real conditions, as described in a recent Australian report:

https://www.health.gov.au/resources/publications/biotoxins-i...

"Toxic mold illness" is a popular scam among the grifters who market themselves as integrative/functional/naturopathic: https://www.thedailybeast.com/why-is-the-internet-so-obsesse...

The CDC warned against urine testing promoted by the "toxic mold" scammers: https://www.cdc.gov/mmwr/preview/mmwrhtml/mm6406a7.htm

[dumbfounder]

What kind of doctor did you go to and what kinds of testing did it take? How long did it take once you figured out what was going on to get to 90% better? My neurologist seems disinterested in finding the root cause. I even had to diagnose myself and then go to several doctors until one agreed. I take migraine meds and they help a lot so far, especially Ubrelvy, but it is $100/pill and I am not sure it will be covered by insurance.

[kathysgeek]

I highly recommend reading about it at https://www.survivingmold.com/resources-for-patients/diagnos...

You can do a visual contrast sensitivity test online: https://www.survivingmold.com/store/online-vcs-screening

I have been treated by Dr Shoemaker and am currently being treated by Dr Scott McMahon who is an expert researcher in the field. Call him and set up a consultation. There is a fair amount of blood tests but your symptom history and VCS tests will go a long way toward diagnosis.

YMMV, but after initial treatment I felt 40% better in 6 months. Ensuring a clean environment is critical. It took 5+ years of treatment to reach the 90% improvement.

However, each person is unique. Younger and less genetically susceptible patients improve much quicker.

https://www.survivingmold.com/shoemaker-protocol/list-of-cer...

[notslow]

If you are concerned about mold being a cause, there are couple of urine tests for mycotoxins that were super helpful for us understanding the mysterious illness in our family.