top | item 38580256

(no title)

vatys | 2 years ago

Yes, I definitely considered that as well. Basically, I knew that 23andme data would eventually exist outside 23andme, whether that be via hack, acquisition, or eminent domain.

I accepted that and did it anyway, taking steps to at least not be directly associated with my sequence, even if my association can be inferred or derived later. My main concern is that their testing would identify something which in the future would be a "pre-existing condition" and get me denied medical care, but there is certainly a long list of other possible consequences.

At this point I don't trust any company or agency that collects and uses data, or the promises made in any privacy policy, but I also don't lose any sleep over it.

discuss

order

hifreq|2 years ago

There used to be a way to request full data deletion on their website. Probably too late to do it now for people who are included in the hack, but could still be a good idea to do it asap.