[sonjaqql]

They don’t have screening for cholangiocarcinoma. It’s not common in the Midwest.

My partner discovered her cancer as a result of an unrelated condition: kidney stone MRIs showed a spot on her liver. We’ve been disappointed by every western medicine outcome for the last two years.

The Mayo Clinic was an incredibly disappointing experience. Our last interaction there, after giving some shitty news, our oncologist asked if we ate corn, like in tortillas. She had a theory it might be to blame. I pointed out corn is everything and bitterly wished her luck.

Hopefully, my partner will see her kid graduate high school in three years.

[evantbyrne]

I'm sorry man. Routine cancer screening that is available to the general population is still super primitive. Right now, our lung cancer blood test is the only of its kind, and you need 20 pack-years of smoking history to get it while in trials. We're expanding to other cancers. Once these tests hit market they'll be cheap and effective, but trials in general take a very long time. I really think something needs to change with the regulatory process to get lifesaving tech to people more quickly, because although it needs to be a regulated marketplace, there is a staggering human cost to how inefficient the current system is.

[lamontcg]

> They don’t have screening for cholangiocarcinoma. It’s not common in the Midwest.

It isn't common for anyone under 70 which is why they don't spend a lot of effort on diagnosis and treatment of it. Friend of mine died from it when he was like 33 though. I hope you beat it.

[timr]

I'm sorry! Liver cancer is really tough. Hopefully they found it early and/or find that it's slow growing.