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analogj | 2 years ago

So this is partially the reason why I built my own open-source Personal Health Record (PHR) Fasten Health [1][2]

In my experience patient portals vary from incredibly functional to almost worthless, which was a huge problem for me given that some of my important specialists were in the latter bucket.

Honestly, everything that I've read comes to the conclusion that EHR's aren't designed for patients, nor practitioners, they're built for the accounting dept. Patient portals have been tacked on-top to comply with govt regulation & certification programs [3], but UX/usability is almost universally lacking.

Thankfully the FHIR API's that Fasten leverages seem to be fairly consistent:

- the interoperability standard (FHIR) ensures that patient medical records are (somewhat) consistent.

- EHRs APIs are tested against an automated test suite before they are "approved" - its not comprehensive, but its better than the subjective UX rules.

[1] - Marketing - https://www.fastenhealth.com/

[2] - Source Code - https://github.com/fastenhealth/fasten-onprem

[3] - https://chpl.healthit.gov/

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