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p410n3 | 1 year ago
My doc says my crohns is inflaming the whole end part of my colon somewhat consistently; my small intestines are fine. Many other patients of hers have inflammations at specific parts that are more severe, and also sometiumes the small intestines are affected.
And then my PSC seems to (so far) only affect my small ducts; which doesnt mean it cant get more severe but so far is "less damaging" then "normal" PSC. No one seems to really know if these are the same disease, related or entirely different. Its kinda crazy tbh
eszed|1 year ago
Oh, also nicotine. I don't like being addicted to my vape pen, but a steady dose of nicotine gives me a much wider margin for error with my diet. Curiously, this connection was pointed out by my first, and best, gastro doctor: the two groups who present UC much less frequently than others are smokers and Ashkenazi jews. He told me that (prefaced by "I'm a doctor, so I can't really recommend this, but...) some of his patients found cigars helpful, and are fairly low-risk, as smoking goes. I used cigars for years to kill sub-clinical flares, before getting tired of the smell, and the time-commitment and hassle, and worried about the blood-pressure spikes they induce. Vaping is superior in every way, and I have made the cost-benefit wager that whatever (fairly low, so far as we can tell) health risk that comes with vaping is less than the risk and consequence of colon cancer from less-controlled UC.
That is, by the way, one of the big clues to varying etiologies: some people's UC is exacerbated, not helped, by nicotine. (My understanding is that Crohn's is always exacerbated.) My doctor friend and I believe we understand the mechanism behind why it works for my particular case.