My husband is going in to start a second try at car-t tomorrow (HGBCL DH/TH). We got all the same warnings and we were scared the first time. It wasn't that bad. Besides the 3 days he was out of it due to neurotoxicity (which looks much scarier than it is), he has been fully present with me and the kids. The treatment weakened his body but he got up and started building his strength back up. It only took a few weeks to get moving around again. The biggest hassle for him was not being able to drive for 60 days but even that brought us together more. Car-t or any treatment for that matter is not guaranteed to work. Chemo knocked the cancer back so much that it gave him another year of life and we's made the most of it. He felt better than he had in years after chemo. Then he relapsed and we did car-t, and that gave him another 5 months. This next car-t may give him yet another span of time. Sure, a cure would be ideal but 'getting down the road' far enough to try something hasn't been a bad strategy. We are living in a state of hope. Hope helps.
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