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No1 | 11 months ago

I have been wanting to get my genome sequenced for years, and had been thinking 23andme might be one of the better options because of the possibility of invoking the CCPA to get my data deleted after sequencing. Never did it because I wonder if they sell your info to some third party the second it comes off the sequencer, and also because I'm skeptical that they would fully comply with a deletion request.

For people who would like to get their DNA sequenced but are actually concerned about privacy, are there any better options?

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EGreg|11 months ago

I guess it's just my programming instincts, but I just immediately think of the possible worst case scenarios and how strong are the guarantees they're prevented.

Dividing by X? I immediately think what if X is zero. Dereferencing X.Y ? I think what if X is null / nil. And so on.

So when it came to the DNA, I was hesitant to do it, since your DNA can wind up in all kinds of databases. And it turns out I was probably right.

What you could have done is sent in the information anonymously, or under a fictitious name. You can still use an email address and log in and see the results. Or you could use someone else's name from another country (with their permission), but then if that person ever gets in trouble, the DNA evidence might somehow implicate you (such as the guy with the last name NULL who got a lot of parking tickets LOL). A couple months ago I actually did submit with heritage.com and 23andme for a friend, so I think there was no place where you had to provide ID or something.

sandos|11 months ago

"Sequencing" make it sound like you want 100% of your SNPs scanned, that is not something that 23andme does afaik.

This is a "shotgun" chip approach which sparsely samples your genes in an economic way. They will concentrate on areas of more interest and so on, in a way that is useful for genealogy for example.

ekianjo|11 months ago

Until you can do it with a kit at home, probably none