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jrgoff | 11 months ago

I'm not sure how this fits in, but in my experience a further complication as someone with chronic pain/illness is that often the thing that bothers me the most isn't what I would describe as painful. I would describe it as very uncomfortable but on a different axis than pain. As a simple example that I think most people can relate to - I do not think of being dizzy as painful, but it's very impactful if you are dizzy all of the time. I had an episode of vertigo that was one of the most miserable experiences of my life but I don't think I experienced much pain during it.

I guess if the goal is to tell whether the person needs pain meds that complication may not matter as much since they don't help (afaik) with those symptoms. But I do sometimes feel like my health problems get taken less seriously if I report on my pain levels rather than my discomfort and/or how it impacts me. Eventually I found a migraine pain scale that focuses on how it affects your life rather than directly how physically painful it is and that helped me have a normalized system for reporting.

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