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rpaddock | 6 months ago

I must give some background so you don't think I'm being factious or silly by what I'm about to explain.

Next week it will be twelve years since my wife killed herself due to Chronic Pain. Willing or not thrusting me into being an advocate for those with Chronic Pain. Most specifically advocating for those with Intracranial Hypotension due to Cerebrospinal Fluid (CSF) Leaks and those poisoned by Fluoroquinolone antibiotics such as Levaquin, Cipro etc.

See our documentary Pain Warriors about the whole saga of my late wife. It is free to watch many places. I get no remuneration of any kind from Pain Warriors.

As someone with Lupus "The Spoon Theory" was created by Ms. Christine Miserandino.

Anyone that spends time in Social Media related to chronic health issues is going to come across someone talking about 'Spoons'. Yes, the utensil that you eat with.

A normal health person has an unlimited number of spoons per day. Someone with a chronic condition may only have five or ten if they are lucky.

Each 'Spoon' represents a task of daily life. Say just getting out of bed, taking a shower or eating a meal, each being one spoon.

When you run out of spoons for the day your day is over, or you start paying by borrowing spoons from tomorrow, which makes tomorrow a worse day than today.

So the linguistic words being looked for are already being measured by the community itself in a scale of Spoons. As silly as it might sound.

Ms. Miserandino explains how this all came about here:

https://www.butyoudontlooksick.com/articles/written-by-chris...

Something I need to add, because I mentioned Lupus, is that food sensitivities to Nightshade plants, common in our diets, can mimic the systems of Lupus and Rheumatoid Arthritis. If you or a loved one has those, eliminate the Nightshade family from your diet for a while and see if there is any improvement.

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