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user568439 | 6 months ago

My wife with Long Covid for 3 and a half years has the same issue and doctors just don't want to be bothered by her. For example spirometry test showed that her lung capacity is fine but the test itself left her exhausted for one week.

The pulmonologist analysing the results didn't even want to hear about her idea to do 2 tests in 2 sequential days. It was going to be harming for her but she was willing to do it just to have some evidence of what happens to her next day after an "effort".

She also asked for help to understand why polluting or pollen can trigger her fever and even coughing blood. Doctor just said she doesn't know and there is not test he can do.

It's so discouraging the lack of curiosity, eagerness to help and to try to learn new things 99% of doctors show.

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