[presidentender]

One of my mom's best friends when I was a kid had Huntington's. She was a few years older than mom, and her sons were a few years older than my brother and I. One of them chose to get tested. The other chose not to. I remember thinking that was foolish, but I was seven years old. In retrospect, it's strange that a seven-year-old was privy to such things.

[onionisafruit]

I chose not to get tested when the test was new. I still haven’t, but I feel confident I dodged the bullet based on my age vs my relatives’ age of onset. I used to wonder if I could take the news of having HD. Now I wonder how life would have been different knowing for sure I don’t have it.

[sriacha]

How did you live differently knowing it was a possibility? It must have always been a shadow lurking nearby?

[chneu]

I completely understand why someone wouldn't want to get tested.

There are several episodes of House M.D. that deal with this. Hadleys, one of the doctors, mom had Huntingtons and house hounds her to get tested. She doesn't want to get tested. Really great set of episodes.

I can completely understand how knowing/not knowing would change how you approach life.

[RataNova]

That's a heavy thing for a kid to carry, even if you didn't fully grasp it at the time