I think it's normal for the parents to resent the NHS for this, but from what I've read about about patient experiences, many US doctors believe "chronic lyme" is not a real diagnosis, and that TDOT blood test she took is not standard of care, so private insurers, wouldn't cover it either. So in the US, a patient would likely end up paying up to their deductible for all those tests that ruled out other things, and then still pay out of pocket for a specialist. I'm open to hearing otherwise, but just because the NHS experience was bad, doesn't give me confidence that the average US experience isn't also bad.
rootusrootus|5 months ago
It's like the Internet just has an allergy to saying anything nice about America, even if it's only faint praise.
CharlesW|5 months ago
It claims that "US government agencies are taking tick-borne disease much more seriously", and that may be their words, but I challenge you to point to actions which support them. It also doesn't mention that Trump administration actions have decreased and destabilized overall federal support environments (NIH/CDC) that fund tick-related disease research.
I have a friend who's gone through a similar years-long journey with his daughter. In Silicon Valley, at least, the medical establishment spent years trying to gaslight the family about their daughter's symptoms.