(no title)
chrisgeleven | 4 months ago
ChatGPT literally guided me through the whole external appeal process, who to contact outside of normal channels to ask for help / apply pressure, researched questions I had, helped with wording on the appeals, and yes, helped keep me pushing forward at some of the darkest moments when I was grasping for anything, however small, to help keep the pressure up on the insurance company.
I didn't follow everything it suggested blindly. Definitely decided a few times to make decisions that differed from its advice partially or completely, and I sometimes ran suggested next steps by several close friends/family to make sure I wasn't missing something obvious. But the ideas/path ChatGPT suggested, the chasing down different scenarios to rule in/out them, and coaching me through this is what ultimately got movement on our case.
10 days post denial, I was able to get the procedure approved from these efforts.
21 days post denial and 7 days after the decision was reversed, we lucked into a surgery slot that opened up and my child got their life saving surgery. They have recovered and is in the best health of the past 18 months.
This maybe isn't leveling the playing field, at least not entirely. But it gave us a fighting chance on a short timeline and know where to best use our pressure. The hopeful part of me is that many others can use similar techniques to win.
Some comments were deferred for faster rendering.
dweekly|4 months ago
I've found that people often forget to call their state senator or assemblyperson. It has consistently amazed me how quickly a large company that's sitting on their butts about a topic will move lickety-split once their Government Affairs and/or PR teams are on the thread...
Another tip from having worked at a regulated entity: a physical letter to the CEO mailed to HQ creates a mandatory-response paper trail that will produce a very, very different (better) outcome than e.g. asking to talk to a supervisor while on a call that's not going well.
Brainfood|4 months ago
bmurphy1976|4 months ago
That's awful but I'm glad you were able to figure this out. I've had my own problems with insurance companies, but nothing to this level. I can't imagine the frustration, especially with YOUR CHILD'S HEALTH on the line.
Five years back I ended up getting surgery for a herniated disc. I was in immense and crippling pain. Before having the surgery, we decided to go through a round epidural shots. I had done that 20 years previously and it resolved the problem, so why wouldn't I?
Turns out my insurance company (who I will name: BCBSIL) delegated the approval for the epidurals through some kind of extra bureaucratic process with a 3rd party. It took days and additional effort on our end to get approved.
I remind you, I was in crippling pain at the time.
The delays getting this approved lead to me taking more Ibuprofen than I would otherwise have taken, which in turn lead to signs of internal bleeding. I had to ease off the Ibuprofen and significantly increase the amount of codeine (a drug which does not sit well with me) just to get by. Now not only did I have to wait for the approval, but I then had to wait for the signs of internal bleeding to go away before the doctor would give me the shot (which was the right call, even though it sucked).
Delays, compounding delays, compounding delays, all while I was absolutely miserable.
Anyway, I finally got approved and got the shot and it kinda helped, but didn't fix the issue. I had a second shot, got worse, and then decided we had no choice but to schedule the surgery.
The most frustrating thing (but something I am glad for) is that the surgery was approved immediately.
It's so maddening how inconsistent the whole thing is.
like_any_other|4 months ago
Don't forget about the individuals responsible. Both the ones that made the denial decision, and the ones that instituted the internal system that incentivizes such denials.
chrisgeleven|4 months ago
You know, it is one thing if it is you or I as terrible as that is.
But this was a 6-year-old.
itissid|4 months ago
Calling 100's of people Ofc the find one poor guy never heard of such a sum denies this kind of line of questioning. Then the insurance company uses this to deny all claims made by the pharmacy for ALL their patients for that given drug/medication.
The pharmacist told me the mountain of documentary evidence they have to collect to rebut these denials is very large. Once a customer at their pharmacy said he did not want to sign off on a paper that he got a medication, the pharmacist got the customer's ok though to video record his consent, just so he does not have to deal with this mess.
He also mentioned to me that a pharmacist should NEVER pay any kind of reimbursement to an insurance company on a claim that was denied cause that somehow legally can let the insurance company deny future claims. Not entirely sure what exact legal procedure allows them to do that.
magicalhippo|4 months ago
Baby got regular inspections of the heart, lungs and eyes (too much oxygen in the blood can lead to problems with the cornea or something), including after checkout.
They got billed exactly zero.
Both parents even got full pay during the hospital stay, so didn't have to worry about the economy.
Ok, so I pay a fair bit of taxes here in Norway, and some of it is used on stupid stuff. But overall I like knowing my life won't be ruined because of some random event forced me into insolvency.
diob|4 months ago
You can be fine for years, but a single, major medical event can zero out those salary gains and lead directly to bankruptcy. It's a systemic flaw that isn't obvious until it's your turn to deal with it.
ksclarke|4 months ago
necovek|4 months ago
You are likely thinking of ROP (retinopathy of prematurity, where retina starts detaching due to prolonged stay in the incubator).
seethedeaduu|4 months ago
brightball|4 months ago
Without getting into details, the moment I realized that he was being intentionally obtuse I started looking into options.
First contacted an attorney who essentially said, “Yes, I can do it but I’m going to cost a lot and the insurance company won’t reimburse you for my time.”
Kept looking and discovered public adjusters were a thing. Did some research, found one who was reputable and he took me on for free. Pretty sure we used net, about 2-4 hours of his time.
He told me exactly what was going to happen, how the insurance company was going to react and it played out exactly as he said.
1. He requested a process to take the valuation of everything damaged in the fire to a 3rd party arbiter.
2. Insurance company will send you a letter saying it’s not time for that yet. We will proceed anyway. And we did.
3. He will nominate 3 arbiters and the insurance company will nominate 3 arbiters. Neither will select either of the others nominees and an independent 3rd party will select one instead.
4. The moment the insurance company realizes the valuation of your things will be outside of their control, they will become extremely agreeable. And they did.
And honestly the only thing I really wanted was another week in a hotel for my family because the company cleaning my house of smoke was short staffed over the holidays. Would have cost them likely $1,000 but instead he escalated the situation dramatically.
DesiLurker|3 months ago
egorfine|4 months ago
georgeecollins|4 months ago
But also, sometimes people from other countries-- I am thinking parts of Europe-- underestimate how well paid people in the US often are. They compare the averages, like the US only makes 20% more per household, why do they put up with this or that. But that comparison is for the whole country, so imagine if you were comparing all of Europe or China.
I had a friend in Spain at a similar company as mine say, how can you put up with no safety net, etc. But I look at his company and every one at my company at any level gets paid 2-5x as much. So like these are less serious issues if you are paid an extra $1-200k/ year. It doesn't explain the inaction, but I believe it is why a lot of politically influential people don't care.
willio58|4 months ago
You can probably see where the problem comes in. Take, for example, a politician who campaigns on Medicare for All or universal healthcare. To win an election, they often need massive campaign funding—much of which comes from wealthy donors, including those in the medical or pharmaceutical industries. And once in office, they’re targeted by powerful lobbying efforts worth billions of dollars from those same industries.
In the end, the issue is that politicians can legally receive millions in donations and support from industries whose interests might directly conflict with the needs of the people they’re supposed to represent.
Ultimately though, it is known by most people irrespective of party affiliation that medical costs are out of control. One recent example of this collective understanding was when the united healthcare exec was killed. Before there was even a suspect, people generally knew why he was assassinated. Most people in the U.S. have either been directly affected by the insanity that is our healthcare system, or one of their loved ones has. Those that haven’t yet, it’s just a matter of time. It’s just so pervasive.
dclowd9901|4 months ago
The way our government is designed right now, the populace doesn't really have elected representatives. More accurately, they have a corporate bought-and-paid for stooge that managed to be more likeable in a political race than their opponent, so we don't actually have anyone representing our interests _as a country_ at the federal level.
tptacek|4 months ago
wrs|4 months ago
Also, if healthcare wasn’t tied to having a job, then the inherent laziness and moral degeneracy of people without jobs would be encouraged by letting them not be sick. (BTW, being self-employed does not count as “having a job” in this mindset.)
thatfrenchguy|4 months ago
The French system is more predictable (because any vaguely sane healthcare system has a price for a code instead of negotiated rates, negotiated rates is the most inefficient way to run this market) & you can get cost estimates though. And in both countries, if you live in a small town in both systems, the healthcare you will receive will suck.
blitz_skull|4 months ago
1. Americans are not displeased with the situation. Ironically, I think this is one place most Americans agree there is a problem. The solution is the hard part because:
2. This presumes a drop-in solution where no one loses. This is where the fight is.
3. This presumes that democracies do what is logical or beneficial for the vast majority, which is a very naive view of democracy.
codegeek|4 months ago
It is a sad state and I have almost given up on the hope that someday it will change. I m lucky enough to afford healthcare and feel for those who can't.
wafflebot|4 months ago
mothballed|4 months ago
Almost no one gets a bill from the hospital and just pays it, and in most cases if you do it's totally financially illiterate.
elif|4 months ago
andy99|4 months ago
Countries with “free” also healthcare ration it and don’t cover everything.
Socialized insurance is still insurance, and at least in Canada it’s the only game in town, so if you have a procedure that is denied or not available your choice is basically to go to the US and pay for it and be in the same position as an uninsured American.
dragonwriter|4 months ago
It is certainly not a direct democracy where each individual policy is resolved by separate independent voting, no.
> So then insurance-based healthcare is what American people truly want?
Pretty consistently, no, but there is not any single alternative that a majority of the American people prefer recently (for a while, as far back as the 1990s, there was a clear popular majority for universal single-payer), and more importantly, it is not the only issue that factors into people’s voting decisions.
goodluckchuck|4 months ago
tpurves|4 months ago
BurningFrog|4 months ago
The patient ends up just as dead, but there is nothing to get furious about like when the doctors could fix it, but only if someone pays for it.
lucasban|4 months ago
robrenaud|4 months ago
"In contrast to their largely negative assessments of the quality and coverage of healthcare in the U.S., broad majorities of Americans continue to rate their own healthcare’s quality and coverage positively. Currently, 71% of U.S. adults consider the quality of healthcare they receive to be excellent or good, and 65% say the same of their own coverage. There has been little deviation in these readings since 2001.
Compared with their counterparts, older adults and those with higher incomes register more positive ratings of the quality and coverage of their own healthcare."
https://news.gallup.com/poll/654044/view-healthcare-quality-...
micromacrofoot|4 months ago
umvi|4 months ago
It's not a simple democracy, no (i.e. "enact a national-level vote for every issue and majority vote wins"). It's a constitutional republic where basically you have 50 mini countries each with different weight in the house of representatives and in the electoral college and a bazillion checks and balances that make repealing existing laws and enacting new ones very difficult. I think the majority of Americans do not like the current healthcare status quo, but getting changes that everyone is on board with through the political machinery is very difficult and Americans are polarized and tend to distrust change plans proposed by the opposite party (since parties tend to propose legislation that favors their own first).
throwforfeds|4 months ago
It's because our politicians are largely owned by our corporations and spend a ridiculous amount of money protecting their interests [1]. We almost had a public option with the original "Obamacare", but it was forced out of the bill [2].
Also, just turn on Fox News for an evening and realize it's been the number one news channel in the US for 20-something years. They've been a right wing corporate propaganda machine for a long time, all while brilliantly portraying themselves as the "underdog" fighting the mainstream media. Americans aren't very educated and take pride in their ignorance, unfortunately. [3]
[1] https://en.wikipedia.org/wiki/Citizens_United_v._FEC
[2] https://en.wikipedia.org/wiki/Public_health_insurance_option
[3] https://www.youtube.com/watch?v=QFgcqB8-AxE
unknown|4 months ago
[deleted]
levocardia|4 months ago
ransom1538|4 months ago
Moving our system to 340 million people + letting our corporations out of paying would put the US into an economic death spiral. US corporations would love this plan. But at 340 million... I don't see doctor visits but once every 2 years -- many would just die waiting for appointments.
bko|4 months ago
I have insurance through my employer as do most Americans. And most are happy with their insurance. I can go to the doctor often same day, I can see a specialist and pay just a co-pay of between $25-50.
I had some bills but my out of pocket max is something like $5k, which I have saved up. The benefits of living in the US is that the same kind of work (engineer) pays about 3x as much here and you pay a lot less taxes (save many multiples of my out of pocket max).
So I prefer to live in a vibrant economy and take care of my own insurance.
msla|4 months ago
https://edition.cnn.com/2024/03/13/uk/england-nhs-puberty-bl...
The NHS and its bizarre political agenda is an example of what can happen when a government controls access to health care.
saghm|4 months ago
Presidential elections are even worse because they're determined by electoral college vote rather than popular vote. Even ignoring the potential for "faithless electors", all but two states allocate the entirety of their electoral votes to the candidate who wins the majority of their vote, which means that if you live in a state with a majority who reliably vote for a specific party's candidate every four years, your vote for president is effectively meaningless.
The only obvious way to fix these issues with how elections work would be to elect people who make different decisions about how to run them, which is hard to do because of the issues themselves. The system is self-reinforcing in a way that makes it extremely difficult for the average person to do anything about it, and any desire to do so gets weighed against the concerns about the policies that you might actually get to influence by voting for one of the two candidates who might actually win. At the end of the day, people who are concerned with the fundamental systemic flaws in things like elections and healthcare still likely end up picking pragmatism over principle (with the expected value of a vote for a candidate who is almost guaranteed not to win being lower than one who is might be less desirable than a third-party one but still has an actually realistic chance of winning and is preferable to the other major party candidate) or just check out of the system entirely (with people not bothering to vote at all already being a fairly common phenomenon in the US).
fallingfrog|4 months ago
As the song goes:
"Everybody knows that the dice are loaded
Everybody rolls with their fingers crossed
Everybody knows the war is over
Everybody knows the good guys lost
Everybody knows the fight was fixed
The poor stay poor, the rich get rich
That's how it goes
Everybody knows"
wouldbecouldbe|4 months ago
somethingsome|4 months ago
Same for other kind of insurances such as issues with the house, etc..
ziofill|4 months ago
BobbyTables2|4 months ago
emeril|4 months ago
-Currently a dictatorship
-Historically more of plutocracy
-Our history has effectively yielded the current healthcare situation especially since those who would be most vocal tend to have better coverage and thus are less invested especially since the high costs are largely obfuscated
tracker1|4 months ago
It's the single most powerful lobbying group as a whole, and nearly every politician is bought and paid for by them. Good luck getting a majority or super majority to work against them.
ponector|4 months ago
thesuitonym|4 months ago
zulban|4 months ago
Having an election day where people vote doesn't mean you live in a democracy.
baby|4 months ago
bluesounddirect|4 months ago
j-krieger|4 months ago
zarmsdos|4 months ago
LeoPanthera|4 months ago
Voter ID laws, voter roll purges, registration barriers, polling place accessibility, early and mail-in voting restrictions, and perhaps most importantly gerrymandering, misinformation, and intimidation all serve to reduce the power of the ballot box.
And that's before we even get to US citizens in Puerto Rico, Guam, the US Virgin Islands, and American Samoa being unable to vote in Presidential elections at all.
zzzeek|4 months ago
billy99k|4 months ago
_heimdall|4 months ago
The incentive structures that have built up around US politicians simply doesn't leave any room for it to realistically happen. Until the incentives are changed I'd vote against nearly any major government program.
tboyd47|4 months ago
frogperson|4 months ago
FpUser|4 months ago
qgin|4 months ago
fukka42|4 months ago
In the end there are more of them who want to "own the libs", or "not pay for freeloaders" than those who want to contribute to another's child surviving.
ab_testing|4 months ago
1 A very high cost of drugs due to no intervention by the government as part of free market philosophy. This means that the same insulin that costs $25 in Canada can be sold for up to $1000 per month. New introduced drugs for Alzheimer's or other diseases can cost up to 50k per year - again because no price controls.
2. Insanely high prices of services due to a captive market - example a ten minute ambulance ride can cost up from $1000 to $5000. The private ambulance companies know they can charge a high base rate because they are connected to a city or municipality via contracts. Bribes as campaign funds are popular here. E.g. a new York based ambulance operator paid 45k in campaign funds to NY's governor elect and got a contract worth one billion dollars
https://www.wkbw.com/news/state-news/report-nysdoh-awards-mu...
3. Overcharging by hospitals for medicines and services again due to a captive audience. The hospitals are free to maintain various price books and you are not told what each service will cost at the time of administration of service. lately the hospitals have been forced to open up their price books but they are so convoluted that no normal human can decipher those prices.
Thus a ten cent aspirin would cost you $25 in the hospital and a MRI can run up to 15k.
4. Very high charges for doctors due to strict control on the number of MD positions and no increase in colleges or D seats over multiple years.
https://www.aamc.org/news/press-releases/new-aamc-report-sho...
5. Insurance companies have a for profit motive and need to extract their profits from premiums paid. Thus they fight tooth and nail to deny procedures and medications and set up convoluted processes for appeals.
6. Extensive fraud on Medicare and other government run health programs especially in durable medical goods and fake billing. In fact one of sitting US senators medical care company was involved in the largest Medicare fraud fines in the US and he still holds his seat.
https://www.justice.gov/archive/opa/pr/2003/June/03_civ_386....
Infact fraud billing Medicare for services not rendered is so popular that even Insurance companies do it
https://oig.hhs.gov/fraud/enforcement/united-states-interven...
Combine all the above factors and you will see why the US consumer gets so little while paying so much for his healthcare.
ajkjk|4 months ago
nine_zeros|4 months ago
[deleted]
stronglikedan|4 months ago
nmz|4 months ago
No, that's the goal. Denying coverage is how insurance companies make money. The less money they give, the more money they keep.
horns4lyfe|4 months ago
game_the0ry|4 months ago
IlikeKitties|4 months ago
> The hopeful part of me is that many others can use similar techniques to win.
And the realistic part in me says that these tools will be used to deny appeals without a human ever looking into them and making sure you will never get to talk to a human or get approval for anything ever again.
benmw333|4 months ago
apparent|4 months ago
lotsofpulp|4 months ago
Is this incorrect?
evan_|4 months ago
chrisgeleven|4 months ago
And the insurance still played games. Like, it's in your best interest to pay once and get this situation resolved in a scheduled/controlled manner than wait for multiple emergency hospitalizations AND have to pay for this in an emergency situation...you're probably talking at least 2x cost if not more.
kiitos|4 months ago
yep
because "life-saving" isn't a single well-defined boolean condition that can be determined by ER staff as part of triage
> I can't imagine a hospital waiting for an insurance company's approval to pay for a procedure to schedule a child's life saving surgery.
then I guess you've never dealt with major health issues like cancer, blood disease, etc. etc. because what you're describing here happens all the time
dboreham|4 months ago
heavyset_go|4 months ago
Insurance companies, or the companies they pay to launder their involvement, would pay a lot more for that than the public would be able to.
chrisgeleven|4 months ago
lanfeust6|4 months ago
phyzix5761|4 months ago
heavyset_go|4 months ago
If you come in with a gaping head wound and can't pay, by law, hospitals are required to treat you.
If you come in with brain cancer, no one is compelled to give you the radiation, chemotherapy or surgeries you may require, even though it is literally life saving. You are stable, albeit slowly dying, so too bad.
lelanthran|4 months ago
Maybe I'm just too skeptical, but
a) This is a very new account with exactly 1 other posting 3 months ago, and
b) They don't refer to their child with any sort of gender. They even used slightly awkward sentence construction just to avoid gender. Few parents think of their child as an "it".
So either this is a sleeper bot, or the surgery in question was gender reassignment.
Or this poster routinely refers to their child as an "it", not a "he" or a "her".
Cub3|4 months ago
The US healthcare system sounds horrific
ethbr1|4 months ago
The lack of data standardization in health insurance is atrocious. (In the US, CMS/Congress pushing what it can, but at a glacial pace)
The strongest argument for single payer is that a diverse marketplace has demonstrated a fundamental inability to interoperate.
miki123211|4 months ago
Eventually, we'll just have a free (or at least much cheaper) psychiatrist in our pocket.
Sure, AI advice is workse than the advice of a competent professional, but it's very often better no advice, and that's what you get if you can't afford the professional.
ASalazarMX|4 months ago
That is, until someone sells them a turnkey AI service to do insurance claims... and decides to play both teams so resolutions come back at pre-AI levels, and the free market(TM) is happy because a new equilibrium has been reached.
Maybe I just need more sleep.
Sincere6066|4 months ago