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pardon_me | 1 month ago

Nothing he stated suggests this. Not giving a nod to how difficult it is doesn't mean people don't care. Unfortunately it is still true, we all have to advocate for our own care and pay attention to ourselves. The fact that this negatively affects the people who need the most care and attention is a harrowing part of humanity we often gloss over.

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ethbr1|1 month ago

A boxing referee says "Protect yourself at all times."

They do this not because it isn't their job to protect fighters from illegal blows, but because the consequences of illegal blows are sometimes unfixable.

An encouragement for patients to co-own their own care isn't a removal of a physician's responsibility.

It's an acknowledgement that (1) physicians are human, fallible, and not omniscient, (2) most health systems have imperfect information sync'ing across multiple parties, and (3) no one is going to care more about you than you (although others might be much more informed and capable).

Self-advocacy isn't a requirement for good care -- it's due diligence and personal responsibility for a plan with serious consequences.

If a doc misses a diagnosis and a patient didn't spend any effort themselves, is that solely the doctor's fault?

PS to parent's insinuation: 20 years in the industry and 15 years of managed cancer in immediate family, but what do I know?

qiine|1 month ago

I see.

My question is, since you understand this very well, how successful are patients (that manage the effort) at both acquiring scientifically accurate knowledge and improving their health meaningfully?

And maybe share some tips like good knowledge databases?