[xyzzyb]

I'm currently dealing with similar issues. New symptoms started for me this summer, my GP and all the tests and specialists I've seen have no ideas.t

When I do my own research my GP brushes it off. I try to take that in stride -- I do recognize that I am uneducated in the field. But it's disheartening when a specialist comes up with my researched conclusion as one of their top possible explanations.

If you don't tick all their boxes on a list of precisely described symptoms -- which you must self-report -- for a condition that they've looked up moments prior to your appointment you won't get diagnosed correctly unless you are lucky and have managed to find a competent and caring doctor.