Thanks for the clear train of thought. It took me years to realize this, but I was 16 when CFS took me down for almost 15 years: Not the age that you are trained already to think through independently. Being a patient brings a special role-model that forces you to be still, at home, quiet and dependent. I call that the 'ideal patient', it makes you a psychological mess. So yes, this is a result from a physical illness.
On the one hand: I found, after 10 years, that dry air on mountaintops really helped me, so we moved from the Netherlands to Munich for a dryer climate. It turns out that my joints ache from humid air, the pain makes the muscles stiff, that makes me so tired. Also sleeping did not help, because I get only stiff and sweaty in the wrong climate. In Munich I could finally go to the gym every day to get in better shape. Now I live in the Netherlands again with a huge airco and infra-red heating system in de ceiling. I get healthy with one click on a button now.
On the other hand: There is a study showing that cancer patients that have CFS recover after chemo also from CFS. I had chemo and recovered very well indeed. This indicates that the immune system is involved.
So, I only know now what works best for my personal case. Everything else stays a big question mark.
Since there are a lot of different patient groups taken together under the name of CFS, so it is not clear if my solution will help more people. That's also why there is not one cure for all. There is not one cure for all these different groups, there are a lot of cures, yet to be found, for all these groups. It is best to search for your own 'painkiller', it's for now the only way. This is very hard while being ill in the first place, with all the other worries that come along with chronicle illness. I am glad that I just kept on trying to find a solution, also when all others lost faith (only my husband kept believing in me getting better) and not let others force the idea of me being a 'lazy psychological patient' upon me. I wish you all strength and fortune in your quest for a healthy feeling body.
On the one hand: I found, after 10 years, that dry air on mountaintops really helped me, so we moved from the Netherlands to Munich for a dryer climate. It turns out that my joints ache from humid air, the pain makes the muscles stiff, that makes me so tired. Also sleeping did not help, because I get only stiff and sweaty in the wrong climate. In Munich I could finally go to the gym every day to get in better shape. Now I live in the Netherlands again with a huge airco and infra-red heating system in de ceiling. I get healthy with one click on a button now.
On the other hand: There is a study showing that cancer patients that have CFS recover after chemo also from CFS. I had chemo and recovered very well indeed. This indicates that the immune system is involved.
So, I only know now what works best for my personal case. Everything else stays a big question mark.
Since there are a lot of different patient groups taken together under the name of CFS, so it is not clear if my solution will help more people. That's also why there is not one cure for all. There is not one cure for all these different groups, there are a lot of cures, yet to be found, for all these groups. It is best to search for your own 'painkiller', it's for now the only way. This is very hard while being ill in the first place, with all the other worries that come along with chronicle illness. I am glad that I just kept on trying to find a solution, also when all others lost faith (only my husband kept believing in me getting better) and not let others force the idea of me being a 'lazy psychological patient' upon me. I wish you all strength and fortune in your quest for a healthy feeling body.