Ask HN: Educating a child who is severely behind
53 points| jwdunne | 12 years ago
It's clear that he's behind in terms of development due to lack of attention in the first two years of his life, for reasons I don't completely blame his mother but reasons I don't feel are appropriate to disclose.
I'm currently focusing on helping his speech and potty training as a priority, with helping in other areas and being a general father figure. I believe my efforts have paid off because I've been told his rate of development has been remarkable since I became involved.
I was just wondering if anybody who has a child or has studied this area has any extra ideas for my to try? Are there any techniques or methods I can employ to help his development along further?
I'm asking here because this is hacker news and its going to take a seriously effective and elegant hack to get this kid where he needs to be a d further. I can't stand to see a clearly intelligent child locked behind a wall of impeded speech and behaviours typical to a 1 year old.
I eventually want to to teach him the wonders of computers and how to tell them what to do. It will be very hard if we can't communicate effectively.
[+] [-] kvnn|12 years ago|reply
For speech, I recommend having conversations with him as you would an adult, and try to keep eye contact often enough that he sees your mouth as you speak. Don't hound him on mis pronunciations but feel free to correct him as you would a friend who is trying to learn English. Be as sensitive as you would be toward a friend if he gets frustrated or ashamed.
For potty training, he'll need a solid week at home with a toilet he is comfortable going in. Don't take him somewhere unless you can bring the toilet with you. I've brought it in the car before :O . Keep him naked or in regular underwear and be clear what the goal is. sometimes a treat after going in the potty works well. Someone will have to run him to the bathroom at times.
For whatever he likes (dinosaurs, animals, trucks), work on the names of different types. Flash cards work well : http://www.amazon.com/Animals-All-Kinds-Flash-Cards/dp/09382... . My daughter loves going through those while eating - she asks for them and we treat them like a reward for eating her food by herself (one bite, one card). She happens to not really like food.
Get good nutrition going immediately. Vegetables, fruit, and everything else you eat (stomache, allergy and spice issues permitting). Don't start juice if he isn't used to it, and water it down if he is.
Get the mom on the same page. And, remember, he's not your son. If you are going to treat him as your son, do what you can to make that official so that the risks of losing him are reduced. Marry, adopt, whatever. Or be cognizant to distance yourself a bit and be like an uncle.
I'm just a dad, not an expert. Ask away and let me know if anything sounds off. Where are you located?
Good luck :) . Thanks for making the world bettah.
[+] [-] kvnn|12 years ago|reply
It IS important for kids to have caretakers who give them attention, opportunity to be capable for life and economy, and a happy and stimulating environment.
Working towards these things with your kid is literally more important than these things making your kid more developed.
Also: don't smoke or perform other bad habits around him. Nail biting, drinking, getting angry, gossiping, etc. These are negative habits that will rub off.
[+] [-] obviouslygreen|12 years ago|reply
This is almost always good advice, but I think it bears repeating as the crux of this extremely insightful post. And honestly: HN is NOT the place to look for this. I think you're lucky to have someone like kvnn responding up top but you're likely to soon be mired in god knows what.
Go be a dad. Do it the way dads have done it forever: Off the cuff, the best they know how. He'll benefit a lot more from your honest attempts and interaction than anyone else's poor attempts at Best Practices for Other People.
Good luck, and as an adoptee, I thank you for being a good dad to a kid who needs one!
[+] [-] tucson|12 years ago|reply
The book actually has plenty of "tricks". Contrary to what I have read in this page I found (and this is the point of Dr Karps' books) that there are plenty of tricks that are absolutely not intuitive.
For example to avoid a tantrum you repeat to the child what he actually wants ("Jimmy wants to eat more cake") then explain shortly why he cannot and propose something else. I found this works surprisingly well. Just the fact that the child hears what he wants from your mouth seems to make a big difference.
[+] [-] jacquesm|12 years ago|reply
Kids are different, each and every one of them. If all he does is not go to the potty and you have to work at understanding him then things may not be as bad as they seem and a 'crash program' to advance the child to match his peers may not be what's called for. I've seen kids that were potty trained later than this and I know at least several children that are clever but hard to understand at that age and nobody thinks of them as 'behind in terms of development'.
There is no set schedule here, if you are really worried about this - and it seems that you are - you might want to check with local professionals to see if he's really as behind as you think and if a crash program to remedy this is what is called for or a more sedate pace slightly above normal until things are in line again.
As with others here: HN is not the right place to look for advice on this, we're not exactly childcare professionals (even if some of us are dads and moms). My 'qualifications' are that I'm a father of three tri-lingual children and that at the age of three they all seemed to be behind a bit in terms of speech development because of that.
The most important thing to take away from this thread is the 'there is no rush' bit, I second that wholeheartedly, better a happy child that's a bit behind than a frustrated child trying to make up because of pressure.
Much good luck!
[+] [-] kabaddi|12 years ago|reply
When it comes to toilet training, make it as stress free as possible and offer rewards (whatever he really likes). Make sure that he knows what he has to do for the reward and try and make the completion of it as realistic for him as possible (i.e. don't make it near impossible for him to try- obvious, I know but the amount of times I've seen children given something that I think is difficult for me).
Also, if possible, get a professional involved - start with a General Practitioner if you're not sure, but you can also go to an educational psychologist who should assess and then give you recommendations of what your child needs to make further progress. Sometimes these can be simple adaptations to what you're already doing (we do lots of adaptations in the school where I work to remove barriers to learning).
Other than that, good luck - raising a child is one of the hardest jobs you can do.
[+] [-] VLM|12 years ago|reply
The obvious HN analogy is anyone who's ever observed users vs IT. "You mean you spent 15 minutes opening a ticket with IT to get them to put paper in the printer? Seriously?"
[+] [-] SiVal|12 years ago|reply
The relevant news for you is that kids who were only three at the time rescuers arrived almost all recovered without lasting harm. The thing that saved them was LOTS of daily human interaction.
Talk to that boy as much as you can. Hold him, sing to him (singing skill is optional), play with his hands, play "piggies" with his toes, work on naming parts of his face, play "head, shoulders, knees, and toes," play with blocks, talk about colors, have one of you make a funny face and the other one has to copy it then switch roles, and so on. (Don't read too much into it if he's really bad at some of these games. My sons had no developmental problems, and yet I could not BELIEVE how badly they did on some simple mental games: "See this green card, Buddy? It's green, isn't it?" "Yes." "What color is it?" "I don't know, Dada." "This color is green, okay?" "Okay." "So, what color is this GREEN card?" "I don't know, Dada." Yes, believe it or not, this is totally normal.)
Be a little careful not to overstimulate him with too much noise, wild motion, etc., because that can be hard for him to process until he's older, but lots of calm, happy, silly, giggly talking and playing should (slowly) bring him back to the path he would have been on without the early lack of attention.
Also, as others have suggested, do involve doctors in this to the extent you can. There might be more to the story than lack of attention, and "many eyes" are better for debugging problems early, right?
[+] [-] DanBC|12 years ago|reply
Use that sing-song voice. Some people say it's annoying and stupid, but children do react to it. (Don't have the sources to hand, sorry.)
Offer him choices. Don't say "Would you like a drink?" but say "Do you want milk? Or do you want water?" to encourage him to say stuff.
If he's babbling that's good, you want to encourage any noise making.
About the other stuff: investigate "attachment parenting". Poor attachment in early life can have serious effects. You want to try to fix this.
Really, just spend time loving the child and interacting.
There are some programmes designed to help with poor behaviour. Webster-Stratton is one. It gets some criticism because of the way it's marketed.
It might be worth asking some questions on the parenting stack exchange. I seem to remember some people there did work in this area.
[+] [-] b6|12 years ago|reply
Yes, I was looking through this thread for this. It's counter-intuitive, but I really believe it's best to nod and encourage any behavior that is headed in the right direction. I learned this trick from a foreign language teacher.
[+] [-] ars|12 years ago|reply
Usually a older child can catch up, because the older child learns faster than a younger one. This is good - but it has one problem: If the catching up child skips basic practice and drills, he may still know the material (i.e. he caught up), but he's missing something.
For example teaching an older child the times table - he'll be able to learn it easily. But without the constant drills and practice he won't know the numbers off the top of his head as quickly as another child.
This can harm him (his learning) later in life. So my message is don't skip the drills! In your case you don't really need to drill potty training or speaking, since this is something everyone does constantly anyway.
But if you notice anyplace where he knows the material, but is just not as fast, and smooth, at it as he should be, then give him extra practice in it.
[+] [-] junto|12 years ago|reply
The one thing I've learned from parenting is that you have to 'pivot' constantly. You have to adapt to child's brain that is constantly developing and adapting itself.
Enjoy yourself, leave your work at work. Young children are incredibly adept at picking up tiny signals. They know if you are tired and don't want to play with them or read them a story before bedtime. They will punish you for it!
[+] [-] jdswain|12 years ago|reply
I think one of the best things you can do is talk with him, kids pick up language really easily, and it's a great way to learn. Spend time talking more as equals than as parent/child. It's sometimes a difficult balance to get, you need to have authority at times, but at other times it's better to be a friend.
Socalising with other kids is also important. So while putting in daycare may seem like you are avoiding taking care of him, it's really important for his development that he interacts with friends his own age.
Kids (and I guess anyone) can be remarkably sensitive too, so make sure he feels safe at home and has some stability. Talk about this too as sometimes kids get thoughts in their heads that would be better talked about than left for them to dwell on.
And don't worry about things to much, everyone learns this one on the job, you seem to care a lot, so I'm sure you'll do fine. And have fun with him, kids are a great way to relax (sometimes), and also an excuse to do things you wouldn't normally do.
[+] [-] bcbroom|12 years ago|reply
Check with your health insurance to see if they cover short term rehab. If they do (my insurance when I was a grad student did, but it varies by state) they will cover some months of speach and/or occupational therapy (OT always sounds weird to me dealing with kids, but it deals with a bunch of sensory and processing issues).
Anyone with speech issues I would recommend a good hearing test (from an audiologist, not the doctors office). This is how we found my daughter is hearing impaired.
In the US, children with delays are eligible for some services from the public school system. Depending on the district, this will likely be a long wait with some screenings and paperwork, but we got several years of speech and language therapy from very qualified people.
Finally, don't forget a pediatrician. They will be able to give you recommendations of local contacts that can help.
This is not something to be a hero and go it alone, get help.
[+] [-] bnp|12 years ago|reply
[+] [-] equalsione|12 years ago|reply
Your role here is as a de-facto parent. You clearly care about the boy and you should focus on that - you have a huge role to play, but you are not a language therapist/child psychologist/occupational therapist. Your job is to get the little guy the services he needs and be prepared to be stubborn and insistent that he gets them. And there will be lots of "homework" to do that will keep you busy once you get that.
Early intervention is key, so getting into the system and getting access to the necessary services is your top priority. Accept any and every appointment that comes your way. Also, you need to be in it for the long haul - my experience is that it's a case of incremental progress over long periods rather than giant leaps. You may at some point feel that this is over the the top, or that his issues aren't that bad compared to other kids that you encounter. Forget that thought immediately.
Like others here, I would not generally suggest looking for hacks. But one thing that really works is probably something you're doing already - playing. Let the child lead, talk constantly to describe what they are doing and occasionally ask questions. That's a very basic description that should get you going, and once you get access to the services you need, you may be able to find out more (some sort of parenting course for kids with needs is usually part of the process).
Finally, just keep doing what you're doing, but also look out for yourself in all this. Good luck!
[+] [-] VLM|12 years ago|reply
My personal experience is the entire medical community seems to have an avoidance issue WRT food allergies. Oh who knows some kids are just like that. Thats just how some kids are, why don't you wait and see if he catches up. I'm sure that's not the case. Well some kids just develop at a different rate mentally and physically than others. They'd rather MRI my son for suspected stomach cancer than test for allergy antibodies (or was it just xray? It was awhile ago). Seriously. They had us all in suspected cancer mode before they broke down and tried allergy testing.
Eventually, after much arguing, the pediatrician ordered a blood test, referred him to a gastroenterologist, who did some crazy stomach wall tissue biopsy after draining about a quart for innumerable blood tests, and finally, they're like "yeah, he's severely allergic to gluten per both biopsy and blood tests, so stop eating that". And casein and soy.
I found it remarkable how hard you have to push to get tests done for a diagnosis like that. I believe in for profit industry, follow the money. The worst medical scenario for the patient or the parents is probably cancer or something awful like that. The worst medical scenario for the doctors and adminstrators is an illness that is treated by a "simple" diet change and requires no expensive pills, no expensive followups, no expensive surgery, diagnosis wasn't too expensive other than the tissue biopsy work... that's why you have to fight fight fight to even get tested because that diagnosis is a nightmare scenario for the docs.
The point of all this is his development rate skyrocketed once we got him proper food, and he's pretty near caught up to his peers, which is cool. So you'll have to fight extremely hard to test for food allergies, but it might (or might not) pay off. (edited to add there may be other financial nightmare scenarios for doctors which are hard to get tested. Hmm, how about vision testing? Can't learn to read if you can't see the page, but if you can avoid getting the kid glasses you can milk that cow for money for a long time WRT special needs reading classes and such. My daughter had that problem.)
[+] [-] bonchibuji|12 years ago|reply
http://www.reddit.com/r/Parenting/ http://www.reddit.com/r/raisingKids
There are more subject specific sub-reddits. You can find the list on the right side panel in the above links.
[+] [-] icebraining|12 years ago|reply
[1]: http://parenting.stackexchange.com/
[+] [-] nulldog73|12 years ago|reply
Regarding speech, I think the most important thing is being patient. No rush, avoid putting the kid under any kind of pressure. I'm saying this as someone who had done the opposite and is now sure it only made things worse. But you should probably try different approaches. Some prefer highly structured approaches, like ABA. I hate ABA because it's like training a dog. Besides, it made no positive impact on my child (it was probably negative). Yes, she did learn a couple of new words, but she doesn't use any of them in the "real world". Every single word she uses actively she learned while playing, exploring, listening to us, you know, doing all the small, everyday things. Also, I too have a book recommendation -- I have just read "It Takes Two To Talk" (look it up on Amazon -- unfortunately it doesn't appear to have the "look/search inside" functionality available. I can give you some more details when I get back home, email me if you're interested) and I suggest you to take a look. It's very simple, practical and essentially, common sense (most of the other books on the topic I've read aren't exactly like that). But it'll save you so much time. You'll be up to speed in two days, instead of, say, 6 months. There's another book on the same topic I heard was great, but the title escapes me right now :( I ordered it a couple of days ago, so I guess I'm going to know the title again really soon :)
Regarding potty training, what worked for us is: first, it's absolutely crucial the kid is at home all the time for this to work. So, no kindergarten. Second, whatever your specific approach is (I suggest you watch the kid's body signs and always have the potty available :), do it for one week. If it doesn't work, stop. Wait for a month or two, then try again (possibly using some other approach). When the kid is ready it'll just happen.
Please keep in mind that I'm no childcare professional. Also, there are many conflicting approaches. For example, I'm sure someone will tell you, for example, that ABA is great. And maybe it really is, for some kids. I guess you'll have to experiment a lot. Good luck! And don't rush. Just don't rush.
[+] [-] chris_dcosta|12 years ago|reply
I'm sure you have talked this all over with the parent, and like you say there were mitigating circumstances, but it is the other person who has the right to the decision-making. Just keep that in mind that's all.
[+] [-] tokenadult|12 years ago|reply
http://www.amazon.com/books/dp/0857027581
Child development is very complicated to understand, but delightful to observe. (I am the father of four children, one now fully grown and living independently.)
This list of books on language development of children, one of your concerns,
http://learninfreedom.org/talking.html
is a bit old, but quite useful for parents.
[+] [-] itomek|12 years ago|reply
[+] [-] ericssmith|12 years ago|reply
[+] [-] itomek|12 years ago|reply
[+] [-] MarkMc|12 years ago|reply
Perhaps not a hack, but I recommend reading the book, "How Children Succeed" - here's an extract: https://news.ycombinator.com/item?id=5721868
And I wish you all the best!
[+] [-] jfoucher|12 years ago|reply